Post-exertional malaise (PEM)

How do you unwind after a demanding day?

By spending up to a week in bed…

I experience a disproportionate amount of fatigue relative to the activity undertaken. So, one day’s activity may require up to a week of bed rest and sleep.

In practical terms, for example, a day’s travel may mean I miss the following day’s excursion. I’ve lost count of the number of days when I’ve gone away, only to spend the next day or days confined to the hotel room.

As well as generalised inflammation, I have arthritis in my knee, hip and lower back. I should take stronger painkillers, but I’m not allowed them because I’m on some psych meds. I’ve been treated for schizoaffective disorder since 1998.

Sometimes my exhaustion is mental as well as physical. I love the company of others, but I also need to be on my own quite a bit.

Sometimes I just want to curl up in a ball like the cat.

I don’t feel sorry for myself. I try to follow the example of Job, though it’s difficult at times.

Posted in